Specialized Focus Support Groups
These are "virtual" groups affiliated with the U.O.A.A., staying in touch electronically through email and chat rooms.
Pull-Thru Network
Pull-thru Network is a non-profit organization formed by,
and for, the families of children born with an anorectal,
colorectal, or urogenital disorder and any of the associated
diagnoses. These diagnoses include, but are not limited to,
Imperforate Anus, Cloacal Exstrophy, Anal Stenosis, Bladder
Exstrophy, Cloaca, VACTERL/VATER Association, or Hischsprung's
Disease.
http://www.pullthrunetwork.org/
Teen Network
The Teen Network is dedicated to providing education,
information, support and advocacy as it addresses the concerns of
those 11 through 17 who have or may have bladder or bowel
diversions, IBD or similar medical challenges.
http://www.teenntwrk.com/index.html
YODAA
The Young Ostomate & Diversion Alliance Association
consists of young people with an interest in any of the following:
Ileostomy, Colostomy, BCIR, Malone, Mitrofanoff, or bladder
augmentation, Bowel or bladder incontinence, VATER, exstrophy,
Hirschsprungs, Familial Poluposis, Spina bifida, etc.
They have a discussion board on the site
http://www.uoaa.org.
Make sure to check it out! YODAA also publishes a bi-monthly
e-newsletter. If you're interested in receiving it, send your
email address to our group moderator on the discussion board.
http://www.yodaa.org
30+ Network
The 30+ Network exists to meet the needs of ostomy and
bowel/bladder diversion patients in their 30s, 40s, and even in
their 50s. 30+ recognizes that people with ostomies in this
phase of their lives, are concerned about dating, marrying,
divorcing, traveling, career, starting a family, raising children,
or fulfilling the role of caretaker for aging parents.
Join the 30+
Network: kathydipo@yahoo.com
Send your name, address, phone number, email address, age, date and
reason for surgery. ALL INFORMATION IS KEPT CONFIDENTIAL AND
WILL NEVER BE PROVIDED TO ANYONE.
Continent Diversion Network
The Continental Diversion Network (CDN) is a surgery
support group of people who have or will have bowel or urinary
diversion surgery resulting in a continent pouch or reservoir.
They provide information through one-to-one support through the
exchange of emails and phone calls.
lkramer22@verizon.net
GLO Network
GayLesbianOstomates (GLO) is an association of ostomates
that happen to be gay or lesbian. They produce a quarterly
newsletter and have their own website and email address.
http://www.glo-uoaa.org